A Smith-Magenis Guidebook: Exploring Adult Residential Settings

Recognizing the need to support those with Smith-Magenis Syndrome beyond school-age years, PRISMS formed a workgroup chartered to explore residential life post “high school” and to create a publication for the SMS community. This group included parents of adults with SMS and professionals skilled in developing residential services. The guidebook includes information about a variety of residential programs, both in the home and in the community, helpful “how-to” suggestions for finding support and funding, and case studies contributed by families from across the country. These case studies provide personal insights about the benefits and challenges of different living situations. Also touched on are how these young adults spend their days. This guidebook was created with individuals who have SMS in mind, but is a helpful tool for those with any intellectual / developmental disability.

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